I’m still doing well but I do want to say this: brain tumors suck.
During my follow-up appointment on July 3 the doctors decided to admit me to the ICU again to drain fluid from my face. In their estimation, the post-op swelling was reaching problematic proportions. My face was swelling with cerebrospinal fluid (or CSF), which is the stuff that our spine and brain both live in. The presence of that fluid makes it hard for my face to heal from surgery and so it had to go.
The way they got rid of the excess fluid was by installing a drain in my back, kinda like tapping the end of the CSF system. The installation hurt about as much as you would imagine. Nobody wants a needle put in their back, let alone a plastic tube. In this whole process of brain surgery the pain and discomfort I felt when they installed the drain was the worst thing I’ve felt.
There’s still a lot of good stuff to keep in mind. I’m alive and I am still happy to be alive. It amazes me that I live in a time where I had a brain tumor and they were able to remove it while keeping me alive. Also, my swelling is way better. The drain worked and I have that to be grateful for, too.
The downside? I just got home after 11 days locked up in a hospital with a drain in my back. While it worked and saved my life (and is allowing me now to heal from surgery) 11 days away from my wife and kids is one of the worst things I’ve had to endure.
But I’m home now, basking in the glow of my family. I’m resting and sleeping well. I feel great. My pain is mostly gone, the swelling is disappearing, and I feel more like myself everyday. I feel better about the road ahead, too.
But——just in case you were wondering——brain tumors still suck.
Thanks for the love, the prayers/thoughts, and the palpable feeling of community. I know I’ve got a lot of people pulling for me and I’ve felt it every step of the way. I couldn’t be more grateful for it. If there’s a silver lining in all this, that’s certainly it.