Set Backs and Updates

I’m still doing well but I do want to say this: brain tumors suck.

During my follow-up appointment on July 3 the doctors decided to admit me to the ICU again to drain fluid from my face. In their estimation, the post-op swelling was reaching problematic proportions. My face was swelling with cerebrospinal fluid (or CSF), which is the stuff that our spine and brain both live in. The presence of that fluid makes it hard for my face to heal from surgery and so it had to go.

The way they got rid of the excess fluid was by installing a drain in my back, kinda like tapping the end of the CSF system. The installation hurt about as much as you would imagine. Nobody wants a needle put in their back, let alone a plastic tube. In this whole process of brain surgery the pain and discomfort I felt when they installed the drain was the worst thing I’ve felt.

There’s still a lot of good stuff to keep in mind. I’m alive and I am still happy to be alive. It amazes me that I live in a time where I had a brain tumor and they were able to remove it while keeping me alive. Also, my swelling is way better. The drain worked and I have that to be grateful for, too.

The downside? I just got home after 11 days locked up in a hospital with a drain in my back. While it worked and saved my life (and is allowing me now to heal from surgery) 11 days away from my wife and kids is one of the worst things I’ve had to endure.

But I’m home now, basking in the glow of my family. I’m resting and sleeping well. I feel great. My pain is mostly gone, the swelling is disappearing, and I feel more like myself everyday. I feel better about the road ahead, too.

But——just in case you were wondering——brain tumors still suck.

Thanks for the love, the prayers/thoughts, and the palpable feeling of community. I know I’ve got a lot of people pulling for me and I’ve felt it every step of the way. I couldn’t be more grateful for it. If there’s a silver lining in all this, that’s certainly it.

4 thoughts on “Set Backs and Updates

  1. I am not surprised that brain tumor suck. I have had to deal with a few crappy things in my life … not a brain tumor, thankfully … and two things stand out. One, you get through it and you realize your future life is going to be good, in part because you can remind yourself that you’ve already been through the worst, the rest is easy peasy. Two, we remember good things far better than we remember bad things. Over time, you will think back on the wonders of your life, and those wonders will feel immediate. But things that suck … our memories of them are almost abstract. I remember the Giants winning the World Series like it was yesterday, but I can barely recall the pain of kidney stones (hope I haven’t cursed myself now!). Tell your family we are thinking of them, as well.

  2. I’m happy to hear you’re healing but sorry about the painful treatment you had to endure. I believe in prayer and that all our prayers are heard concerning your healing. God bless you cousin and your family!

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